Levels of user involvement/partnership
Engage – Invite users to give views
Co-design – Plan and design information together
Co-produce – Plan, design, create and review information with users as equal members of the team
Involve users in a meaningful way. Embrace the process – it’s easier than you think. Starting small is better than not involving users at all.
- Plan user involvement throughout your project
- Describe users’ roles and responsibilities
- Ensure users match your audience – include those with lower health literacy and disadvantaged people
- Include budget to pay people for their time, but be aware of the impact on Universal Credit payments
- Consider safe guarding
Use the right method for the task/stage
- Steering groups
- Focus groups
- Engagement events and development workshops
- Surveys and interviews
Run sessions effectively
- Use plain language in all materials
- Choose an independent facilitator who understands the user group
- Run sessions in familiar, accessible settings
- Set objectives for each engagement
- Be flexible, new issues may emerge
- Thank users and show how you have acted on their insights
Co-produce health information whenever you can.
- Test with users not involved in the development
- Invite feedback on live projects
Work with users – make health information easy to use, accessible and relevant.
Published by the Patient Information Forum October 2023. Review date: October 2025.