Start your Perfect Patient Information Journey

The Perfect Patient Information Journey (PPIJ) is a 7-step process to embed high-quality patient information along care pathways, helping people get the right information at the right time. 

7 steps to improving the quality of patient information

PPIJ is a validated process of insight work with healthcare teams and patients to identify information gaps and recommend improvements.The process can be used in any disease area. 

The process was piloted with the Inflammatory Bowel Disease Service at St Mark’s Hospital, North London, and at Hereford County Hospital. It is now being used by the Dorset Macmillan Cancer Information Project. 

PIF is currently running PPIJ projects in cancer and IBD, with a pilot planned in psoriasis. The St Mark's pilot is now focusing on evaluating the impact of health information interventions (see Projects for more information).

PIF has published two reports on the PPIJ. The first looked at patients' perceptions of a PPIJ, and the second describes the practical process piloted at St Mark's and Hereford Hospital. These can be found in Resources - Reports and publications.

 

Putting PPIJ into practice in other therapy areas

PIF understands the time constraints facing NHS teams, so the process is designed to require a minimum input from clinical staff.  PPIJ provides an opportunity for the NHS, national patient support groups and industry to work in partnership. 

Industry typically provides financial support to cover PIF’s time for a disease-specific pilot within an NHS service. The Perfect Patient Information Journey is tailored to the needs of each service.

PIF also provides expert consultancy on individual steps in the PPIJ process.

“It’s been a very interesting and insightful experience for the whole team. It gave us the opportunity to reflect on patient information, its role in disease management, and how information is communicated to patients. I found the PIF team to be very knowledgeable with good insight into patients' needs, and I thoroughly recommend them to future services.
Dr Naila Arebi - Consultant Gastroenterologist, St Mark's Hospital

Further information

For more information on PPIJ services contact Sophie Randall sophie.randall@pifonline.org.uk