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The Perfect Patient Information Journey

The Perfect Patient Information Journey is PIF’s long running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.

The Perfect Patient Information Journey is PIF's long running project investigating how high-quality information can be provided throughout a person's journey with a long-term condition.

Phase 1
The Perfect Patient Information Journey

The phase 1 report, The Perfect Patient Information Journey, was published in May 2017. It reviewed the available academic evidence and used focus group discussions with patients and healthcare professionals to identify what was necessary for a Perfect Patient Information Journey.

 

Phase 2
7 steps to help health services improve information for people with long term conditions

The Perfect Patient Information Journey took the findings and recommendations of the first phase research and applied them in practice in two pilot projects at St Mark’s Hospital, North West London and Hereford County Hospital Trust.

The results of this work were published in 2018 in the phase 2 report, 7 steps to help health services improve information for people with long term conditions. By using the 7-step process, services can create a Perfect Patient Information Journey and transform the information experience of patients in a matter of months.

 

Phase 3
Evaluating the impact of health information

The phase 3 report examines the methods and models available to evaluate health information and reports on the outcomes of information improvements at the PPIJ pilot site at St Mark’s hospital. It also demonstrates how the PPIJ process interacts and supports the PIF TICK criteria to help answer the crucial question: Does your information make a difference?

 

We are grateful to AbbVie for providing funding to support the Perfect Patient Information Journey programme.

It’s been a very interesting and insightful experience for the whole team. It gave us the opportunity to reflect on patient information, its role in disease management, and how information is communicated to patients. I found the PIF team to be very knowledgeable with good insight into patients' needs, and I thoroughly recommend them to future services.
Dr Naila Arebi, Consultant Gastroenterologist, St Mark's Hospital

View and download the reports below

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PPIJ Phase 1: The Perfect Patient Information Journey

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PPIJ Phase 2: 7 steps

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PPIJ Phase 3: Evaluating the impact of health information