Reports & publications

The Perfect Patient Information Journey

The Perfect Patient Information Journey is PIF’s long running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.

Balancing the risks and benefits of AI in the production of health information

This statement, developed in collaboration with an expert working group, outlines PIF's position on the risks and benefits of using artificial intelligence (AI) in the development of health information.

PIF Annual Review 2023

View and download the Patient Information Forum 2023 Annual Review.

Personal Health Records

PIF has produced two reports on Personal Health Records, The Guide to Personal Health Records: learning from voices of experience and the Guide to Health Records Access.

Producing Health Information for Children and Young People – 2023 Update

This 2023 updated PIF guide focuses on the practical aspects of creating good health information, including involving children, choosing the right format, writing for children, and tackling sensitive issues.

PIF Annual Review 2022

View and download the Patient Information Forum 2022 Annual Review.

Removing Barriers to Shared Decision-Making

Key learnings and outcomes from a joint shared decision-making project with the Patients Association in Nottingham and Nottinghamshire ICB.

Fair Market Value Survey Findings

The survey of patient organisations by PIF, NRAS and Cancer 52 found inconsistencies in payment rates and support for the development of a patient organisation 'rate card’.

Health and Digital Literacy Survey 2022/23

Download and view the Full Report and Main Findings and Recommendations from PIF's 2022/23 Health and Digital Literacy Survey.

PIF Annual Review 2021

View and download the Patient Information Forum 2021 Annual Review.

Maternity Decisions Survey: Being Induced – Main Findings and Recommendations

View and download the main findings and recommendations of our survey on maternity decisions.

PIF Annual Review 2020

The Patient Information Forum Annual Review of 2020 is available to view and download now.

Health and Digital Literacy Survey 2019/20

Download the Full Report and Main Findings and Recommendations from PIF's 2019/20 Health and Digital Literacy Survey.

The PIF Annual Review 2019

The Patient Information Forum Annual Review of 2019 is available to view and download now.

Covid Choices Survey – Main Findings

Download the Main Findings from the Patient Information Forum Covid Choices Survey.