Reports & Publications

The Perfect Patient Information Journey

The Perfect Patient Information Journey is PIF’s long running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.

Producing Health Information for Children and Young People – 2023 Update

This 2023 updated PIF guide focuses on the practical aspects of creating good health information, including involving children, choosing the right format, writing for children, and tackling sensitive issues.

PIF Annual Review 2022

View and download the Patient Information Forum 2022 Annual Review.

Removing Barriers to Shared Decision-Making

Key learnings and outcomes from a joint shared decision-making project with the Patients Association in Nottingham and Nottinghamshire ICB.

Fair Market Value Survey Findings

The survey of patient organisations by PIF, NRAS and Cancer 52 found inconsistencies in payment rates and support for the development of a patient organisation 'rate card’.

Health and Digital Literacy Survey 2022/23

Download and view the Full Report and Main Findings and Recommendations from PIF's 2022/23 Health and Digital Literacy Survey.

PIF Annual Review 2021

View and download the Patient Information Forum 2021 Annual Review.

A Perfect Patient Information Journey for Scleroderma

PIF is working with Scleroderma and Raynaud’s UK on a Perfect Patient Information Journey for Scleroderma, using the PPIJ methodology tested in our pilot project with St Mark’s IBD Service.

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Maternity Decisions Survey: Being Induced – Main Findings and Recommendations

View and download the main findings and recommendations of our survey on maternity decisions.

PIF Annual Review 2020

The Patient Information Forum Annual Review of 2020 is available to view and download now.

Guide to Producing Health Information for Children and Young People

The 2020 updated guidance aims to help anyone who communicates with children and young people about their health improve what they do. It shares practical advice as well as examples of current best practice in the field.

Health and Digital Literacy Survey 2019/20

Download the Full Report and Main Findings and Recommendations from PIF's 2019/20 Health and Digital Literacy Survey.

Shining a spotlight on shared decision making in the UK

Project summaries from a Parliamentary showcase organised by Abbvie.

The PIF Annual Review 2019

The Patient Information Forum Annual Review of 2019 is available to view and download now.

Personal Health Records

PIF has produced two reports on Personal Health Records, The Guide to Personal Health Records: learning from voices of experience and the Guide to Health Records Access.

Covid Choices Survey – Main Findings

Download the Main Findings from the Patient Information Forum Covid Choices Survey.

Producing Health Information for Children and Young People – 2023 Update

PIF Annual Review 2022

Removing Barriers to Shared Decision-Making

Fair Market Value Survey Findings

The Perfect Patient Information Journey

Producing Health Information for Children and Young People – 2023 Update

PIF Annual Review 2022

Removing Barriers to Shared Decision-Making

Fair Market Value Survey Findings

Health and Digital Literacy Survey 2022/23

PIF Annual Review 2021

A Perfect Patient Information Journey for Scleroderma

Maternity Decisions Survey: Being Induced – Main Findings and Recommendations

PIF Annual Review 2020

Guide to Producing Health Information for Children and Young People

Health and Digital Literacy Survey 2019/20

Shining a spotlight on shared decision making in the UK

The PIF Annual Review 2019

Personal Health Records

Covid Choices Survey – Main Findings

Other resources

Posters

'How-to' guides

Recent webinars and events

COVID-19 resources hub

Case studies

Archived resources