PIF partner PRSB has been commissioned by NHS England and NHS Improvement to produce standards for sharing diabetes information between people and professionals across all care settings.
This includes self-reported data from the increasing number of digital tools available for self-management and medical technology to support remote patient monitoring.
The number of people living in the UK with diabetes is expected to rise to 4.2 million people by 2030, affecting almost 9% of the population.
Poorly treated, diabetes can lead to other conditions including heart disease, vision problems, kidney disease and foot complications.
Personalised care supported by sharing information is seen as vital to improve health outcomes.
PRSB held two focus groups with professionals and patients in June to understand their concerns and views about the information sharing challenges they face.
It will be developing draft standards to test with professionals, patients, carers and systems and technology suppliers in the coming weeks.