Wishing the PIF community all the very best for 2021.

And while we head into 2021 with renewed hope and optimism, it’s important to take a moment to reflect on the year just gone; to look at what we achieved and what we learnt, much of which we already knew but perhaps didn’t fully appreciate.

It certainly reinforced for me the power of community and how when we come together, we are so much stronger. 

I would like to take this opportunity to thank you, the PIF community, for your support and engagement in helping to get several key initiatives off the ground last year, despite the challenges we all faced.

Finding credible healthcare information

In May we launched the PIF TICK and we now have more than 50 members signed up, which is a resounding endorsement of the value you place on having a quality mark for trustworthy health information, to give your communities and the wider public confidence in your resources.

Now more than ever people need to know that they are accessing content which is accurate, up to date and evidence based and the PIF TICK provides that reassurance.

The COVID-19 crisis has shown how easy it is for unreliable and untrustworthy information to make it into mainstream and social media. 

In July, with your support, we published the COVID Choices Report, which explored the challenges people with long term conditions were facing in accessing healthcare.

A lack of trustworthy information and conflicting guidance emerged as the key concern and barrier to seeking appropriate medical help, even greater than age, gender or an underlying health condition.

The current pandemic has reinforced how vital it is for everyone to have access to accurate, evidence based, up to date and culturally appropriate information for their safety and their lives.

Ensuring information is inclusive and does not reinforce health inequalities is essential.

A charter to tackle inequality

The COVID-19 pandemic has exposed existing health inequalities, hitting disadvantaged communities hardest and emphasised the link between low health literacy, digital literacy and health inequality.

This is why PIF is calling for all health information providers to sign up to a Health and Digital Literacy Charter and we are delighted more than 50 organisations have already made this commitment.

The call to sign the charter followed the publication in November of PIF’s Health and Digital Literacy Survey results, which found that the gap between skills and the complexity of health information is leaving millions excluded from making informed decisions about their health.

Progress has been made since PIF last conducted the survey in 2013 with 60% of organisations providing information for those with low literacy or numeracy compared to 35% in 2013 and 58% are providing information for BAME groups, compared to 39% in 2013.

However, there is more work to be done with only 13% of respondents saying their organisation had a health literacy strategy in place. This represented little progress from 10% in 2013.

If we are serious about tackling the health inequalities revealed by the COVID-19 pandemic, then it is important for all organisations producing health information to become health and digital literacy friendly.

In 2021 we need your help to get the message out there that trustworthy health information is a cornerstone of patient and citizen participation in their care delivery. 

Moreover, as the current pandemic shows, it is key to protecting both personal and collective health. 

At PIF we will strive to improve the quality of available health information and to eliminate the health- and digital-literacy gap.

See more

Engaging Long COVID patients

Published:
30th November 2020

Patient Safety Learning looks at some of the concerns facing people living with Long COVID.

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Health Information Challenges and Solutions

Published:
25th November 2020

This week PIF held its Health Information Challenges and Solutions Workshop online for the first time.The open space event is a chance for members to…

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Transforming healthcare through number confidence

Published:
18th November 2020
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'Together we can continue to ensure we move to a health literate world'

Published:
6th October 2020
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Using behavioural insights to encourage a return to care

Published:
14th September 2020

Lack of information and fear of Covid-19 is preventing some patients from getting the healthcare they need. Applying behavioural insights to information…

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Finding credible healthcare information

Published:
15th July 2020
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Why is health information important to me? It isn’t just my job

Published:
7th July 2020
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Key practice points on user engagement

Published:
25th June 2020
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Supercharged Superhero by Gemma Everson

Published:
8th April 2020
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Event report – Using digital tools to maximise health information

Published:
6th March 2020
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Children's book aims to raise awareness of invisible illnesses

Published:
14th January 2020
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Making digital services accessible

Published:
18th December 2019
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Event report – Health Information for Children and Young People

Published:
14th November 2019
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Is digital and social inclusion key to transformational change?

Published:
15th October 2019
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Patient information a ‘linking thread’ at NHS Expo 2019

Published:
12th September 2019
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Health literacy challenge and the NHS Long Term Plan

Published:
2nd September 2019
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Developing health information to engage everyone

Published:
2nd July 2019
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Patient-centred care: all in this together

Published:
11th April 2019
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EU clinical trial sponsors to publish lay-friendly summaries of key findings

Published:
11th April 2019
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Build trust and confidence to engage with seldom heard groups

Published:
4th April 2019
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NHS plan promises empowered and informed patients via digital tools

Published:
11th January 2019
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Changes in health information over the past 21 years – and the outlook for the future

Published:
4th January 2019
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Health Information. How has it changed over the last 21 years?

Published:
4th January 2019
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Vlog: Celebrating 21 years of health information

Published:
14th December 2018

Listen to Ellie Rose, Patient Information Editor at the Royal Marsden NHS Foundation Trust, vlog about what she finds useful about her…

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Being heard above the noise

Published:
11th December 2018
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Developing information for older people with long-term health conditions

Published:
30th November 2018
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Reviewing public information issued by health and social care bodies

Published:
27th November 2018
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Industry needs to work in partnership with patients and groups

Published:
22nd November 2018
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Measuring and evaluating the impact of health information

Published:
22nd November 2018
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Wales moves towards a digital health future for all

Published:
15th November 2018
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Helping the #HiddenHalf – health information for maternal mental health

Published:
13th November 2018
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Patients encouraged to ask professionals about medicines

Published:
4th October 2018
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Users views needed on digital health records

Published:
26th September 2018
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Getting health information right impacts health outcomes

Published:
20th September 2018

Blog by Amy Corkery – Editor, Patient Information, British Heart Foundation

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Shifting the goalposts: the quest for a digital NHS

Published:
16th June 2017
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