Medicines information is in high demand from patients, particularly those with long term conditions who face complex treatment decisions. They look to patient organisations to provide easy to use information they can understand.
This webinar looks at how patient organisations and the pharmaceutical industry can work together to meet the needs of the public within tight regulatory frameworks. We also look at how medicines information can be reimagined for the future taking advantages of digital innovation and meeting health literacy needs.
Agenda
Introduction
Sophie Randall – Director, PIF
The Code of Practice and the partnership sourcebook
Dr Amit Aggarwal – Executive Director Medical Affairs, ABPI
The ABPI Code of Practice sets out the rules for transparent partnership working with the ultimate aim of avoiding promotion of prescription medicines to the public. The source book sets out best practice working
Reimagining medicines information
Natalie Bohm – Pfizer
New research published in December 2022 found only 32% of people fully understand the package leaflet included with prescription medicines. Most go online to search for new information. The partners in the research Kent, Surrey and Sussex Academic Health Science Network, Unity Insights, Pfizer, National Innovation Centre Ageing and Voice will present findings of a new report looking at options for change.
Working in partnership to eradicate Hep C in prisons
Kuldip Sembhi – Patient Solutions Manager, MSD
MSD has funded the Hep C Trust's peer-to-peer support programme to encourage people in prison to be tested and treated for Hepatitis C. The peer mentors are ex-prisoners who have been successfully treated themselves. The project is part of a wider industry, NHS and third sector partnership which aims to eradicate Hep C with new treatments.
Gilead; HIV Community Empowerment Campaign ‘Find Your Four’
Rebecca Dandridge – Director of Public Affairs, HIV Gilead Sciences
Fair market value – towards a fairer and more consistent system for patient organisations
Jane Lyons – CEO, Cancer 52
Clare Jacklin – Chief Executive, NRAS
NRAS, Cancer 52 and PIF collaborated on a survey of member organisations on their experience of fair market value payments (FMV) when working with the pharmaceutical industry.
Q&A and panel discussion
