Progress towards PIF's ambitious strategic objectives is reported in the 2019 Annual Review. Work to develop the PIF TICK, a new quality mark for health information, continuing progress on the Perfect Patient Information Journey project and the development of a new website made for a busy 2019. Download the review below.
Producing Health Information for Children and Young People – 2023 Update
This 2023 updated PIF guide focuses on the practical aspects of creating good health information, including involving children, choosing the right format, writing for children, and tackling sensitive issues.
PIF Annual Review 2022
View and download the Patient Information Forum 2022 Annual Review.
Fair Market Value Survey Findings
The survey of patient organisations by PIF, NRAS and Cancer 52 found inconsistencies in payment rates and support for the development of a patient organisation 'rate card’.
Removing Barriers to Shared Decision-Making
Key learnings and outcomes from a joint shared decision-making project with the Patients Association in Nottingham and Nottinghamshire ICB.
Health and Digital Literacy Survey 2022/23
Download and view the Full Report and Main Findings and Recommendations from PIF's 2022/23 Health and Digital Literacy Survey.
PIF Annual Review 2021
View and download the Patient Information Forum 2021 Annual Review.
The Perfect Patient Information Journey
The Perfect Patient Information Journey is PIF’s long running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.
Maternity Decisions Survey: Being Induced – Main Findings and Recommendations
View and download the main findings and recommendations of our survey on maternity decisions.
PIF Annual Review 2020
The Patient Information Forum Annual Review of 2020 is available to view and download now.
Guide to Producing Health Information for Children and Young People
The 2020 updated guidance aims to help anyone who communicates with children and young people about their health improve what they do. It shares practical advice as well as examples of current best practice in the field.
Shining a spotlight on shared decision making in the UK
Project summaries from a Parliamentary showcase organised by Abbvie.
Health and Digital Literacy Survey 2019/20
Download the Full Report and Main Findings and Recommendations from PIF's 2019/20 Health and Digital Literacy Survey.
A Perfect Patient Information Journey for Scleroderma
PIF is working with Scleroderma and Raynaud’s UK on a Perfect Patient Information Journey for Scleroderma, using the PPIJ methodology tested in our pilot project with St Mark’s IBD Service.