The Perfect Patient Information Journey

The Perfect Patient Information Journey (PPIJ) is PIF's long running project investigating how high-quality information can be provided throughout a person's journey with a long-term condition. It was broken into three main phases: 

Phase 1: The Perfect Patient Information Journey

The phase 1 report, The Perfect Patient Information Journey, was published in May 2017. It reviewed the available academic evidence and used focus group discussions with patients and healthcare professionals to identify what was necessary for a Perfect Patient Information Journey.

Phase 2: Seven steps to help health services improve information for people with long term conditions

Phase 2 took the findings and recommendations of the first phase research and applied them in practice in two pilot projects at St Mark’s Hospital, North West London and Hereford County Hospital Trust. The results of this work were published in 2018. By using the 7-step process, services can create a PPIJ and transform the information experience of patients in a matter of months.

Phase 3: Evaluating the impact of health information

The phase 3 report examines the methods and models available to evaluate health information and reports on the outcomes of information improvements at the PPIJ pilot site at St Mark’s hospital. It also demonstrates how the PPIJ process interacts and supports the PIF TICK criteria to help answer the crucial question: Does your information make a difference?

We are grateful to AbbVie for providing funding to support the Perfect Patient Information Journey programme.

View and download all reports by clicking on the links below.