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How racism affects health; Marie Curie launches grief video series; Supporting unpaid carers

Your weekly round up of the latest news, studies and views for professionals working in health information (12 March 2025).

How racism affects health

The Health Foundation has published a report highlighting large and unacceptable variations in the experience of the building blocks of health according to ethnicity. The joint report with the Runnymede Trust looked at people's access to the building blocks of health – secure and decent housing, a good job with enough pay, high-quality education and healthy neighbourhoods. It found large variations in experience of these building blocks according to ethnicity. The report identifies ways racism operates within the everyday structures of our society and limits people’s opportunity to be healthy. It says a credible agenda for improving health must address the impact of unequal access to the building blocks of health on different communities and recognise racism as a key health determinant. 

Find out more about the report via The Health Foundation website here.

Charity launches new videos about grief 

PIF member Marie Curie has launched a new video series about grief. The series includes three main films about what grief feels like, what helps with grief and how people can help others who are grieving. It also includes shorter videos showing personal experiences of grief. The aim of the project is to show real, honest and diverse experiences of grief, and add to the voices the charity already features on the topic. Each video has embedded captions, on-screen British Sign Language (BSL) interpretation and the option to turn on Welsh subtitles.

Find Marie Curie's grief videos and shorts on the charity's YouTube channel here.

Identifying and supporting unpaid carers

A new resource to improve the inclusion, support and involvement of unpaid carers has highlighted the importance of offering timely and relevant information. The resource, developed by the Carers Partnership, includes information, resources and best practice examples to help health and care professionals support unpaid carers. It also includes details on the legal responsibilities public health and social care bodies have to support carers. 

Find out more and access the resource via the Carers UK website here.

New miscarriage patient information resources developed

The Scottish Government's Miscarriage Patient Information Working Group, in partnership with PIF member Tommy's, has developed two new NHS Inform pages and three leaflets on miscarriage. The resources aim to provide clear and accessible national information for women and families. They form part of the Scottish Government’s commitment to improve miscarriage care in Scotland. Online resources are available now. Hard copies of the leaflets in English will be issued to NHS Boards shortly and translated and accessible versions will be available soon.

Find the new resource pages on the NHS Inform website here.

How to support more inclusive clinical research 

In this blog, Naho Yamazaki writes about the NHS Health Research Authority's (HRA) role in supporting more inclusive clinical research. Naho says including the right people in research needs to be thought about at the start of the research process but this is not always happening. Issues are often picked up too late, causing increased costs and delays. To help overcome these issues, the HRA will be piloting guidance on how to develop an inclusion and diversity plan with the Medicines and Healthcare products Regulatory Agency (MHRA).

Read the full blog via the HRA website here.

Survey: Help develop an epilepsy information standard

PIF member PRSB has been commissioned by The Royal College of Paediatrics and Child Health to explore the development of an information record standard for all people with epilepsy in the UK. Having completed the discovery and user-centred design phase, PRSB is now consulting on the draft information record standard. The aim of the survey is to address information required to support an individual with epilepsy. This includes information about epilepsy type, seizure impact and perinatal, fertility and offspring health. The survey will be open until 20 March. 

Find out more and complete the PRSB survey on the SurveyMonkey website here.

New translated resources available for children's health campaign

A campaign which aims to educate parents and carers about the importance of brain development in the first five years of a child's life now includes translated resources. The Start for Life Little Moments Together campaign was launched in January. New translated resources include social media content and posters translated into Urdu and Bengali. The campaign highlights how all the little things parents and carers do with their child like chatting, counting, reading, playing or singing, help to build their child’s brain. 

Find out more about the campaign on the Department for Health and Social Care website here.

Report finds society's mental health care needs are not being met

Decision-makers around the world are failing to meet society’s mental healthcare needs, according to a new report. The International Longevity Centre (ILC) report says the failure has negative economic and social consequences that will be magnified across our longer lives. It identifies solutions including implementing a life course approach to mental healthcare provision and embedding new interventions, technologies and concepts to improve outcomes and accessibility.

Read the full report via the ILC website here.

Listen: Director general gives update on the ten-year health plan

In the latest podcast in the NHS Confederation's Health on the Line series, Matthew Taylor speaks with Sally Warren, director general at the Department for Health and Social Care, about the upcoming NHS ten-year health plan. They discuss the public engagement process, the challenges and opportunities in transforming healthcare, and the importance of collaboration with community partners. Sally also shares insights from public feedback and addresses cynicism towards the plan.

Listen to the podcast via the NHS Confederation website here.

See also