The report features PIF’s Perfect Patient Journey Project at St Mark’s hospital alongside good practice from other organisations in our membership, including NRAS, the MS Trust, NHS Trusts, MS Decisions, Macmillan, Lymphoma Action, among others.

 

 

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Producing Health Information for Children and Young People – 2023 Update

Published:
6th July 2023

This 2023 updated PIF guide focuses on the practical aspects of creating good health information, including involving children, choosing the right format, writing for children, and tackling sensitive issues.

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PIF Annual Review 2022

Published:
22nd May 2023

View and download the Patient Information Forum 2022 Annual Review.

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Fair Market Value Survey Findings

Published:
19th April 2023

The survey of patient organisations by PIF, NRAS and Cancer 52 found inconsistencies in payment rates and support for the development of a patient organisation 'rate card’.

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Removing Barriers to Shared Decision-Making

Published:
26th April 2023

Key learnings and outcomes from a joint shared decision-making project with the Patients Association in Nottingham and Nottinghamshire ICB.

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Health and Digital Literacy Survey 2022/23

Published:
27th March 2023

Download and view the Full Report and Main Findings and Recommendations from PIF's 2022/23 Health and Digital Literacy Survey.

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PIF Annual Review 2021

Published:
27th April 2022

View and download the Patient Information Forum 2021 Annual Review.

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The Perfect Patient Information Journey

Published:
1st June 2018

The Perfect Patient Information Journey is PIF’s long running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.

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Maternity Decisions Survey: Being Induced – Main Findings and Recommendations

Published:
14th December 2021

View and download the main findings and recommendations of our survey on maternity decisions.

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PIF Annual Review 2020

Published:
12th May 2021

The Patient Information Forum Annual Review of 2020 is available to view and download now.

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Guide to Producing Health Information for Children and Young People

Published:
16th November 2020

The 2020 updated guidance aims to help anyone who communicates with children and young people about their health improve what they do. It shares practical advice as well as examples of current best practice in the field.

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The PIF Annual Review 2019

Published:
29th April 2020

The Patient Information Forum Annual Review of 2019 is available to view and download now.

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Health and Digital Literacy Survey 2019/20

Published:
5th October 2020

Download the Full Report and Main Findings and Recommendations from PIF's 2019/20 Health and Digital Literacy Survey.

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A Perfect Patient Information Journey for Scleroderma

PIF is working with Scleroderma and Raynaud’s UK on a Perfect Patient Information Journey for Scleroderma, using the PPIJ methodology tested in our pilot project with St Mark’s IBD Service.

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Personal Health Records

Published:
1st January 2017

PIF has produced two reports on Personal Health Records, The Guide to Personal Health Records: learning from voices of experience and the Guide to Health Records Access.

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