PIF took the first steps on the Perfect Patient Information Journey at St Mark’s Hospital in North West London. Information gaps identified by steps 1 - 4 of the process are being addressed by new information interventions. These include the set-up of a new diagnosis clinic; the introduction of a flare card; a review of the hospital’s patient booklet to improve awareness of services; and better signposting to Crohn’s and Colitis UK’s information and support.
The pilot is entering the second stage to evaluate the impact of the changes made using Patient Activation Measures (PAM), healthcare utilisation data and tracking activity to Crohn's and Colitis UK's information from a web-based digital signpost. The St Mark's project has involved a partnership with Crohn's and Colitis UK, and funding has been provided by AbbVie. NHS England has provided Patient Activation Measures licenses to support the project.
The PPIJ process is also being used by the Dorset Macmillan Cancer Information project, part of the Dorset Cancer Partnership. PIF provided specific advice on impact and evaluation measures.
Interim results on the St Mark's project were the subject of three poster presentations at 19th Congress of the European Crohn's and Colitis Organisation in Vienna in February 2020. The project was also part of Parliamentary showcase on support for Shared Decision Making hosted on 10th March by Martin Vickers MP.
The full report and findings will be launched at a PIF event in November 2020 which will showcase best practice in evaluating the impact of health information.