Expert speakers will present case studies and share good practice in producing information for children and young people. Speakers will discuss user generated content and effective ways of involving young people in producing information.
The Patient Information Forum is delighted to be holding an event on Health Information for Children and Young People on Tuesday 12 November 2019. You can view the draft agenda below:
09.30 – 10.00 Registration, refreshments and networking
10.00 – 10.30 Welcome and overview
Chair: Kath Evans - Director of Children’s Nursing, Barts Health NHS Trust
10.30 – 11.00 Meeting the health information needs of young people today, whilst tackling potentially taboo topics
Nick Posford - CEO, CICRA: better lives for children with crohns and colitis and Bina Jesani and Aisha Jesani
In 2017, CICRA was approaching its 40th anniversary. As a charity that supported children affected by inflammatory bowel disease, and their families, it was important to update our information to meet the needs of young people today. We had to completely rethink how we developed it, the formats we might need and how our target audiences might want to engage with it, all whilst tackling potentially taboo topics.
11.00 – 11.30 Climbing over obstacles to think like a child
Kaye Stevens - Care Information Manager, Motor Neurone Disease (MND) Association
Exploring the development of MND Buddies, a new online activity hub for 4-10 year olds close to someone with MND. A candid discussion on how trying to think like a child requires resilience, in the face of budget restrictions, resource and deadlines.
11.30 – 12.00 Refreshment break and Speeding Networking
This will be your opportunity to connect with attendees and share experiences.
12.00 – 12.30 Involving children and young people in the development of information resources
Lucy Bray - Professor of Child Health Literacy, Edge Hill University
Lucy is working with children and young people on three research projects using a range of different methods to develop engaging health information resources.
This presentation will provide an overview of these projects, lessons learned and top tips for working with children and young people when developing resources.
12.30 – 1.00 Improving child and family patient experience through film
Eleanor Stanley – Writer and Director, Stories for Health, Kate Begley - Clinical Physiologist, Evelina London Children’s Hospital and Nicki Bickford - Patient Information Manager, Guy’s and St Thomas’ NHS Foundation Trust
How do you make an instructional video that also has a heart? London Evelina Children's Hospital collaborated with Stories for Health to make a film showing parents how to record their children's seizures at home, using state-of-the-art equipment, through the eyes of one family.
The team will take you through the entire process, from commissioning to shooting to the final edit - with a surprising twist in the tale!
1.00 – 2.00 LUNCH
2.00 – 3.30 Practical session - Using social media to engage children and young people
3.30 – 3.45 Refreshment break
3.45 – 4.15 Experiences of service evaluation into a research project and involving service users in the process
Tara Shea - PhD Fellow, Barts Health NHS Trust / Queen Mary University of London
Tara will discuss clinical experiences, audit development, implementation, qualitative participatory action approach (PAR) and recommendations for how a small idea can grow and develop with the support of service users.
4.15 Sum up and close