What is your current role?
I am currently Digital Project Lead at Crohn’s & Colitis UK, the leading charity for Crohn’s Disease and Ulcerative Colitis.
What is the key area you are working on at the moment?
I am currently leading on a website discovery project for the organisation, to research and discover how we can build a new website that best meets user needs.
It’s a really exciting piece of work that’s a first for us in digital, but by investing in discovery we can go forward with confidence that new website content and functionality will truly meet patient requirements.
What’s your biggest health information challenge?
A tricky one for us is that we can’t meet quickly enough the needs for new and different digital patient information format.
We know that Crohn’s and Colitis patients want information in different formats, like video and podcast.
This all takes time and resource to produce, especially to ensure user experience and accessibility is maximised.
However, we know that in the long term introducing as many different resource formats as possible will hugely benefit patients and help everyone to understand Crohn’s and Colitis.
How can PIF members help you meet that challenge?
It’s been really valuable to hear from other members at events, through networking and via PIF Aware about how they are also introducing new and different digital formats of patient information.
Knowing that we’re not alone in coming up against this challenge is reassuring, and hearing how others are optimising these formats for best user experience and accessibility is a great opportunity for learning.
What’s the best thing about working in health information?
Knowing that more and more people are getting to understand Crohn’s and Colitis.
At Crohn’s & Colitis UK we want everyone to understand these conditions, not just those who live with them.
We also want those who have Crohn’s or Colitis to feel supported and empowered to manage their conditions.
Seeing really positive responses to video content and new online information formats has been really affirming, and through analytics tracking and surveys we can see that this information is reaching more people than ever.
Why did you join PIF?
I joined because PIF had some brilliant events coming up that I knew would support my knowledge development around digital patient information, and I’ve happily been a member since.
What do you find useful about being a PIF member?
I particularly enjoy receiving PIF Aware. I’ve gained so much knowledge, taken part in opportunities and followed leads thanks to the emails.
What top tip do you have to share on health information?
Accessibility is key. Make sure that all new information is inclusive and accessible so it can meet the needs of all patients.
What was your lightbulb moment in health information?
When our app In My Shoes was downloaded over 5,000 times in two weeks, far exceeding our expectations.
Suddenly the lightbulb lit up that people really do want to learn about Crohn’s and Colitis in different and digital ways.